Trevs time in the NICU has had its ups and downs and all around.(So have Mom & Dad) He has overcome many hurdles as he continues to fight and get strong. He has overcome his Oscillator, Ventilator, PDA (heart condition), Chronic Lung Disease, Phenomena, 5 Blood Transfusions, Jaundice, and so much more. He has some huge hurdles to clear again. Trev has developed a mild case of ROP (Retinopathy of Prematurity). ROP is abnormal vessels that grow over the tissues of the retina. The retina is the light detecting layer of cells at the back of the eye that allows us to see. The good news is that he has the most mild form of the condition and hopefully the veins will regress and his eyes will be perfectly healthy. ROP is caused by pre maturity, blood transfusions and the force of oxygen support into his body. In the most severe cases, ROP can detach the Retina from the eye causing complete blindness. There are treatments for the condition that require laser eye surgery, but we are hoping that his eyes will continue to mature and he will get passed this condition. The doctors are giving us positive response that he will overcome this with maturity. Trev will have an eye exam next week to determine the changes that his condition has made over a two week period. Trev is also not producing Red Blood cells on his own, he still is anemic which is a condition where the number of healthy red blood cells (RBCs) in the blood is lower than normal. RBCs transport oxygen throughout the body, so a shortage of these cells can be serious. He has had five blood transfusions due to his Anemia, his Hematocrit levels (which is the measurement of the red blood cells in the body) is at 32%, idealy the physicians like this number to be above 40%. The good news is that his RBC count is not decreasing, the bad news is that it is not increasing. They have given him two shots of Darbepoetin to try and stimulate the bone marrow to produce RBC's. So far this has not been successful. We are hoping with maturity and time for the Darbepoetin to stimulate his bone marrow he will start to produce on his own. Trev is in many of our family and friends prayers as these are two large hurdles for him to clear. We are optimistic about the outcome and are praying for his health. WE LOVE YOU TREV...
Tuesday, October 27, 2009
HURDLES
Trevs time in the NICU has had its ups and downs and all around.(So have Mom & Dad) He has overcome many hurdles as he continues to fight and get strong. He has overcome his Oscillator, Ventilator, PDA (heart condition), Chronic Lung Disease, Phenomena, 5 Blood Transfusions, Jaundice, and so much more. He has some huge hurdles to clear again. Trev has developed a mild case of ROP (Retinopathy of Prematurity). ROP is abnormal vessels that grow over the tissues of the retina. The retina is the light detecting layer of cells at the back of the eye that allows us to see. The good news is that he has the most mild form of the condition and hopefully the veins will regress and his eyes will be perfectly healthy. ROP is caused by pre maturity, blood transfusions and the force of oxygen support into his body. In the most severe cases, ROP can detach the Retina from the eye causing complete blindness. There are treatments for the condition that require laser eye surgery, but we are hoping that his eyes will continue to mature and he will get passed this condition. The doctors are giving us positive response that he will overcome this with maturity. Trev will have an eye exam next week to determine the changes that his condition has made over a two week period. Trev is also not producing Red Blood cells on his own, he still is anemic which is a condition where the number of healthy red blood cells (RBCs) in the blood is lower than normal. RBCs transport oxygen throughout the body, so a shortage of these cells can be serious. He has had five blood transfusions due to his Anemia, his Hematocrit levels (which is the measurement of the red blood cells in the body) is at 32%, idealy the physicians like this number to be above 40%. The good news is that his RBC count is not decreasing, the bad news is that it is not increasing. They have given him two shots of Darbepoetin to try and stimulate the bone marrow to produce RBC's. So far this has not been successful. We are hoping with maturity and time for the Darbepoetin to stimulate his bone marrow he will start to produce on his own. Trev is in many of our family and friends prayers as these are two large hurdles for him to clear. We are optimistic about the outcome and are praying for his health. WE LOVE YOU TREV...
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Trev
- Dave and Jannell Webb
- Trev was born on Sept. 4th 2009, He was a big surprise for mom and dad. We are so thankful he is doing well
Good to see you guys tonight. You have all been through so much I can't believe it! As we pray for Jenna we will pray for Trev too.
ReplyDeleteWhat a cute baby! I love his little boy clothes! So precious! We are routing for you guys and our little Jenna. It's good to know that we are not the only ones who seem to be in the NICU forever. You guys are a strength to us, and we are sorry you have to go through all this. We will definitely pray for his eyes to get better, and for his hematocrit count to go up. Jenna is struggling with the same thing right now. We had to do the Darbyprotein too. Hopefully things will go well and we'll all be out by Thanksgiving!
ReplyDeleteI meant I am rooting for you guys! Sorry, my spelling is not the best. =)
ReplyDeleteHopefully the bone marrow will start doing it's job soon. Lainey had a her 3rd blood transfusion less than a week before she came home.
ReplyDeleteI don't know what ophthalmologist they have rotating through the NICU but I highly recommend Dr. Scott A. Larson of the U of U Moran Eye Center (hopefully he is still there. He was rotating through the NICU when Lainey was there.) The eye exams are the worst thing to be in the NICU for. It makes the babies cry and cry when they pry their eyes open. :( Don't stick around for that exam.
Keep growing Trev! Hang in the David and Janelle.